Friday, August 19, 2011
It was July 5th when Jamie and Nick Museousky found out their 21-month-old son, Cohen, had a rare subtype of Acute Myeloid Leukemia.
"You just love your child so much and then we get the phone call that says, 'it's leukemia.' We were pretty much devastated," said Cohen's father, Nick.
"As parents, it's horrible to have a sick child, especially with an illness where you know it could be fatal," said Cohen's mother, Jamie, as she held back tears. "In the hospital, when he was so sick, it was horrible to see. We wanted to switch places with him."
Bone Marrow Drive In Honor of Cohen Museousky
Saturday, Aug. 20, 10 a.m. to 3 p.m.
310 E. 2nd Street (Big Brothers Big Sisters offices)
Although they can't help battle the leukemia for their son, they're helping to organize a bone marrow drive to find a match for Cohen and thousands of other kids on the bone marrow registry.
"You never think it's going to happen to you but when it does, it's terrible, but it really gives you a drive and a fire to try to find a cure and to help out in any way you can," said Jamie.
Friends of the couple are helping set up the bone marrow drive, hoping to find multiple matches on Saturday.
"We want to help Cohen, and yes, we want to do everything we can for him, but the more people we can get down here to find a match for any kid that's on the list right now, that's the ultimate goal of this whole thing," said Mark Eby, friend and Jamie's co-worker at Big Brothers Big Sisters.
The Museouskys also hope to help find more blood and platelet donors. Shortly after Cohen's diagnosis, local medics couldn't find platelets for a transfusion because of Cohen's rare blood type, A negative and CMV negative.
"We feel so driven to do this drive and we're so thankful for all the people who've helped us plan it because we know it's going to affect so many more people than just our son," said Jamie.
Bone Marrow Drive
Saturday, August 20th, 10am – 3pm
Big Brothers Big Sisters Offices
310 E. 2nd St.
Wichita, KS 67202