Kansas girl with microcephaly hospitalized with life-threatening virus

Posted: Updated:

 A Kansas girl suffering from a rare condition has been hospitalized with what her parents are calling "a wicked, evil virus."

According to the Facebook page The Hartley Hooligans, 13-year-old Lola Harley, became very ill at home on Sunday and was struggling to breathe. After the girl's oxygen treatments, her parents, Gwen and Scott, took her to their local children's hospital where Lola was admitted to the pediatric intensive car unit. 

She was diagnosed with Enterovirus and Rhinovirus.

"This is a wicked, evil virus that Lola is fighting very hard to beat. We are on day 6 of this virus, and typically days 3-7 are the most critical," the Facebook post says. 

Lola suffers from a medical condition called microcephaly, a medical condition that doesn't allow a child's brain to fully develop. Her sister, Claire, suffered from the same condition and passed away in December of 2018 at the age of 17.

The Hartleys helped lead the charge for a new state law that grants access to CBD oil with low levels of THC to treat chronic conditions.

(MORE: Claire and Lola's Law went into effect this year)

Lola's parents say she's receiving the best care from doctors, nurses and respiratory therapists who have been "working tirelessly around the clock to help her recover from this horrific illness."

"We almost lost her on Wednesday and again last night. She chose to stay. She is fighting with everything in her to stay. It is ultimately her choice, and we are slathering her with love and holding her around the clock, telling her how strong & amazing she is and how important her life is to us and to so many others."

The family is asking for your prayers.

"But I beg of you, please get down on your knees and pray for our girl if you feel so inclined. Talk to our sweet Claire & other angels you know. Ask them to watch over Lola and heal her completely from these viruses now. We thank you from the bottom of our hearts, and we will keep you posted on how she is doing. Right this minute, she is *here,* she is holding her own, and we are trying to keep hope alive."

Check out these photos from across KAKEland snapped by our viewers, staff and local officials. Do you have pictures to share with us? Email them to news@kake.com.