Tuesday, August 16, 2011
Filmmaking has been a passion for 14-year-old Clay Beabout since the age of 8. It's been a dream for a person who hasn't had the easiest path through life, suffering from a disorder that requires constant surgery just in order to stay alive. So when Clay hooked up with the Make A Film Foundation, the syndrome was a struggle he chose to turn into a Hollywood production.
"I just wanted people to know what I go through and what all these kids go through," said Clay.
What Clay 'goes through' each day is called V.A.T.E.R. syndrome. It's a life-threatening disorder he was born with. At 14 years old, he's already undergone 40 surgeries.
"For him normal is leaving everyone, doing surgery, and then finding some reason to fight hard enough to get back in the swing of things," said Clay's mom, Amy Beabout.
It's the battle captured in the film, "Deep Blue Breath." Clay wrote and stars in the film alongside some names you may recognize. Sean Astin, also known as 'Rudy,' plays Clay's father. Natasha Wagner, daughter of Robert Wagner and Natalie Woods, plays Clay's mother. And as Lord Vater, is Ernie Hudson, one of the notorious 'Ghostbusters.'
But this movie isn't about the big names or the special effects. It's about a message.
"I want them to take away from this film, that they realize that they shouldn't take things for granted," said Clay.
"Clay has brought everyone into his most holiest of holy moments, his most difficult time periods, that time just before he goes under," said Amy.
It also takes viewers to the time that he comes out of surgery, with another operation under his belt, and taking another step to conquering 'Lord Vater.'
The Wichita Premier of "Deep Blue Breath" is at the east 13th Warren on Thursday. Tickets are now available, and viewers are encouraged to buy them early.